May 2013
35 posts
shutupaubrey:
team “i wore this yesterday but i’m going to a different place so it doesn’t matter”
3 tags
ncrainbowgrrl replied to your post: Grief.
Big Big Big hugs. Be good to yourself. Don’t feel badly if you haven’t cried. We all grieve in our own ways… sometimes cry when least expected. But it’s clear you’re hurting, and don’t feel badly that you’re not doing it in some “prescribed way.”
Thank you <3 I started to process a bit tonight when I went to a Panachida (a memorial service) at his...
13 tags
Grief.
“There really is no catch-all defined way for people to grieve, is there?”
As most of you know, I’ve been dealing with the death of a close family friend. And grief manifests itself in many ways. In my case, it takes a long time to manifest itself. I’m not an overly emotional person; that’s not to say that I’m cold, it’s just that being raised a...
Curse the migraine not the mind
arabellaivy:
Let the veins protrude from my aching skull As my brain pivots in mindless dance Prove that the pulsing pain is mind over matter Stay still Turn from the light that burns your inner core
Scream silently into your sheets
Don’t move because that gives it power Don’t speak Don’t breathe too heavily Feel the pain That’s all you can do Run from your self absorbed thoughts ...
2 tags
thatmword replied to your post: Eternal Memory + Fr Michael Rosco!
So sorry for your loss Rachel. Will keep his family in my prayers.
Thank you Emily. I’m still very numb and in shock, so I still haven’t really reacted to it or been able to process it. I appreciate the prayers for his family though. Thank you so much.
9 tags
Eternal Memory + Fr Michael Rosco!
Early this morning, Fr. Michael Rosco passed into eternal life after complications from a car accident on Friday afternoon.
There is very little information available right now, but I want to thank all of you who kept Fr. Michael in your thoughts and prayers these past few days.
Please continue to think of Pani Susan, Vlad, and their family as they go through this trying time.
Eternal Memory!
9 tags
caper: Prayer Request - Update →
rpeeze:
I just got an update about Fr. Michael and unfortunately the prognosis is not good.
Today they discovered that Fr. Michael is bleeding internally and they now don’t think that it looks good. They called his son (who stayed in NJ to watch the house and the dog) to come out to Johnstown. They tried…
Please continue to keep Fr. Michael and his family in your prayers. His O2 stats...
That M Word: A Migraine Blog: "My Days of Losing... →
thatmword:
[“Untitled 2012”: image by Rachael Jablo]
Rachael Jablo has been a chronic migraineur for 5 years. She’s also a fine art photographer. Recently, she decided to utilize her skill to publish a photo book, “My Days of Losing Words,” to raise awareness about migraines in a whole new way.
In…
14 tags
Auras.
So as I’ve mentioned before, I occasionally get auras before my migraines.
When I do experience an aura, it’s usually accompanied by what I’ve described as a Flash Migraine (see this post). But the more I read about auras, the more I realize how incredibly highly individualized even this rare part of a migraine attack is.
If you look “migraine aura” up on Google...
“Marry your best friend. I do not say that lightly. Really, truly find the...”
– N’tima (via kevinidentity)
11 tags
prayer request
rpeeze:
Anyone out there who can spare some prayers or good vibes or whatever you think is best, I’d appreciate if you could direct them toward Fr. Michael Rosco. He was involved in a serious car accident while leaving Johnstown, PA to return home to NJ.
Please keep his family, Pani Susan and their son Vlad in your thoughts as well.
Thank you all!
Reblogged from my main. Please keep Fr....
24 tags
So I got back the results of my allergy panel.
And guess who doesn’t have allergies?
That’s right. The girl who has been on prescription allergy medication for her seasonal allergies for as long as she can remember apparently has no allergies.
Now I know that this wouldn’t have tested EVERY single thing that I could be allergic to (e.g. I’m allergic to pineapples. There’s no way around it. I cannot eat fresh pineapple without my mouth...
20 tags
This Trendy "Strong is the New Skinny" Thing (and... →
First of all, hi everyone. It feels like I haven’t blogged about anything sociologically substantial in a while, and I might be a bit rusty so please pardon the potentially poor prose. Anyhoozle. N…
Okay, so this isn’t migraine related, but it relates to fitness and body image and I think that’s something incredibly important.
Especially as someone who has struggled with...
Help!
thelamedame:
brittieslifeasiknowit:
its-a-spoonie-life:
Guys I’m on a mission. I want to follow every single chronic illness blog on tumblr! Add your urls/Reblog/like! Anyone with a chronic illness at all!
If I already follow you I’d appreciate it if you reblogged this! Would mean a lot to me!
I’d like to follow fellow spoonies as well.
boosting/curiosity
14 tags
caper: Soooo, my room smells like myrrh. →
rpeeze:
And I have no idea why.
So I’m sitting at my computer looking something up and all of a sudden I’m hit with this wall of the scent of myrrh.
Let me back up a bit.
Earlier today, I went next door to the rectory of the Serbian Orthodox Church next door to talk to them about using their hall for…
Sharing this from my personal because it’s something significant to me....
Reblog if you have a chronic illness. Whether it...
My emotions when I'm having a bad migraine:
danathepaina:
foginthefog:
THIS.
if you follow me on tumblr and like my posts a lot i probably have fondly memorized your username and consider you a pal
vangoghsdaughter:
It is completely unfair that comfort foods are also trigger foods .-.
silverhex:
i’d actually go running if there wasnt anybody around to see me stop after 43 seconds
12 tags
Today has been a good day!
It’s Easter for me, so I went to Liturgy this morning and got to see lots of people. The Pascha Liturgy is among my favorites, and I always take a video of my father reading the Gospel because it’s in both English and Greek on Pascha. (Some churches do it in other languages too I’m sure). It’s my favorite Gospel reading.
And I got to see friends who were home from school...
14 tags
Christ is Risen! Christos Voskrese! Christos...
Hey all!
I’m sorry that I’ve been missing a bit this week, but it has been Holy Week for me, which means LOTS of church. As an Orthodox Christian, I celebrate Easter (Pascha) tomorrow, and tonight we had Resurrection Matins, so I can officially say Christ is Risen!
I’m a cantor in my church, so I’ve been doing a lot of singing as well. (Being up in the choir loft also...
isabelfeye:
Anxiety isn’t a fashion statement it’s a miserable disorder with actual real uncontrollable symptoms that eat you alive and distance you from the people you love so stop making it “trendy”
9 tags
I went to bed last night with the assistance of some medication for my headache… And an ice pack.
I woke up around 6:30AM, and switched out my icepack. But I didn’t take any more medication because I knew that I had work at 10AM.
So here I am, sipping on a cup of coffee, still feeling awful, but ready to go to work (It take me about 5 minutes to get there…)
I only have two...
3 tags
ncrainbowgrrl replied to your post: ncrainbowgrrl replied to your post: Day 29 -…
I love learning… and I love peer-reviewed journals… it’s nice to know the info has at least been vetted by others in the field. There are other Migrainey speech pathologists online- have you come across them?
I know exactly what you mean. And I haven’t actually! I guess I’ll have to look harder!...
April 2013
105 posts
9 tags
Day 30 - Recap
Describe your HAWMC experience in one word!
Eye-opening
…It counts as one word if it’s hyphenated, right?
This experience has been a total eye opener for me. I’ve connected with new people and gotten to know the people I’ve been in touch with even more. Through this month, I’ve blogged (nearly) every day, which is something that I don’t always do on this...
4 tags
...It was blood work.
2 tags
michellethemagnificient replied to your post: Day 29 - Congratulations!
I knew there was a reason I was drawn to you. We’re so alike! I’m also pretty smart and love/am good with kids. :)
Yay! I love finding more things in common with people than “Hey, I get migraines too!” hah. Working with kids just seems to make me happy :)
2 tags
ncrainbowgrrl replied to your post: Day 29 - Congratulations!
Wow- those are awesome cakes…. and being brainy and loving to learn is really under-appreciated in our society. Call me a dork, a nerd, or whatever, but I seriously miss the world of academia, and the challenges presented in/by that arena.
Thank you! It’s something I love to do. I’m hoping that maybe I can earn myself...
10 tags
Spoonie Tumblr Map - Google Maps →
brittieslifeasiknowit:
Find spoonies from around the world.
Spoonie Tumblr Map directions
http://goo.gl/maps/T4bv0
click edit
play around with zoom to find your location on the map
click the peg(between the hand and squiggly line)
click your location and add you name/tumblr name and whatever you want to add
then click ok and you’re done
if you still need help or need clearer instructions let...
6 tags
I'm going for an allergy test tomorrow...
and if it turns out to be another blood test instead of a scratch/skin test, I’m probably going to throw something.
Also, my doctor said, “If I get the results of this allergy test back and it says you’re allergic to dogs, will you guys get rid of your dog?”
I looked at him and said:
Sorry, we’ve had a dog in our house for all but two years of my life...
4 tags
thatmword replied to your quote: “And then, a headache. But can I really call it a…
This book is so beautiful!!
I’m only on page 47/237 (according to my Nook at least), but I love it! Such a great read so far!
8 tags
“And then, a headache. But can I really call it a headache? The words are running...”
– Andrew Levy (A Brain Wider Than The Sky)
25 tags
Day 29 - Congratulations!
We all know Health Activists are awesome. Share three things you love about yourself, things you’re great at, or just want to share. Don’t undercut or signpost!
I can decorate cakes (and other similar baked goods) quite well. This is something I discovered on my older sister, Jo’s 30th birthday. She decided that she wanted an R2-D2 cake. My mom had the Wilton pan and was like,...
13 tags
Day 28 - Must Follow!
Create a must follow list for your community on a single social network. Share your top 5-10 tweeters, blogs, or Facebook pages.
I have to agree with Emily in this post over at That M Word today.
When it comes to health activist blogs, twitters, or Facebook pages, I think we’re all looking for something different. Some of us are looking for support, some for straight up researched...
13 tags
Today was going so well...
After one of my hometown friends was drafted into the NFL earlier today, I was ecstatic!
AND I had tickets to see Thoroughly Modern Millie with my mom at Papermill Playhouse!
So great, right?
And it was.
My mom wasn’t feeling so great, so she wasn’t sure if she was going to come, but she really wanted to see this show, so she came.
When the woman who put on way too much perfume...
when you feel you have lost everything, you still...
dearscience:
books
unexpected kindness in strangers
the rest of the world to travel
languages to learn
animals to take care of
volunteer work to do
the power of a good night’s rest
the changing of seasons
infinite things to learn
billions of people to meet and possibly love
billions of people who might love you back
